Kennedy's Performance

For folks who aren't on Facebook, here is Kennedy singing at the first ever Conference Idol last Friday night (07/24/09). As I mentioned in the video description on Facebook, she only got 1/2 way through and folks started clapping thinking it was over but she was okay with it and it was still super cute.

9th International CHARGE Syndrome Conference

We are back after an amazing conference in Bloomindale, IL. It'll take a couple of days to really process and digest all that went on at the conference: new friendships made, old friends reconnected, information learned, joyous events and people celebrated. It really was a great conference of firsts as Brownie Shott, our conference chairperson, pointed out in her address to the group: online registration, conference idol, professional day, and more. It was so exciting and really an honour to be a part of it, both in the planning & execution of it as well as to be there with my family, taking part in it all.

Today I'm uploading pictures and splicing video clips (and doing a gargantuan amount of laundry) but I will put my thoughts down a little more in depth very soon. For now, here are some of my photos I uploaded this morning:
http://www.facebook.com/album.php?aid=142098&id=587985427&l=d8fe284026...Enjoy!

I have some more pics, but am saving some for the CHARGE conference edition newsletter, especially of the awards presented, etc. If any of you have photos, stories, quotes about the conference, etc, you'd like to submit, please send them to me. The more the merrier! Click here for my email: Email Lisa.

Videos From the Conference

Here are a few videos I took at the conference, mostly of Ms. Kennedy & Ms. MacKenzie together.

These are all from the dance/carnival on Saturday night. We begin with the girls doing an eloquent version of the Chicken Dance:


We then move on to the Disco portion of the evening with our two little "Dancin' Queens":


Now we have the "Egyptian Twist" - I'm sure Chubby Checker could even appreciate the girls' take on his tune:

A little spinning and a little twirling from our mistresses of the dance:


We end the videos with the "Funky Town Clap-Down" (I think Jeanie & I were both shocked that, given their combined coordination, nobody got slapped in the face during this particular ensemble):

Countdown Is ON!

The big countdown until the CHARGE syndrome conference in California has been added to the top of the blog. I am excited to be finally having Ms. Kennedy accompany me to one of the conferences; she is going to have a ball. Kyle will also be coming to help his poor old mother and enjoy some southern California sun (and girls as well, no doubt!) Ryan & Graeme will be working so they won't be able to come unfortunately. I can't believe it's only 23 days!