Friday, November 20, 2009
Kennedy Presenting Charge Syndrome To Her Classmates...
Many of you have seen this on Facebook or through the Charge yahoogroup but I know some of you follow the blog only so I'm reposting this video that Kennedy did on Charge syndrome for her classmates. Some of the terms were changed/simplified and some things didn't go too far in depth - it was more of an "intro" for her classmates to help them understand Charge. This was orignally set up for a sign language club that Kennedy & her interpreter are running at the school, to introduce why Kennedy uses sign. Another teacher of the other grade 6 requested her to do it for her class and finally her own teacher had her do it for her homeroom class.
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8 comments:
We loved this video! My husband and I were very impressed with Ms. Kennedy- so studious! Great job!
Wow. Wow, wow, wow! Kennedy, you are so poised, polished and well-spoken! I am so, so impressed with your presentation on CHARGE syndrome.
Lisa - aren't you just beaming with pride? I am! Your Kennedy just blows me away! Thank you for sharing this - I am so inspired.
This is extraordinary. I'm so glad you posted here as I had trouble with the listserv link. She makes an excellent presenter, really holds her own. I wish I'd had her on my team in my working years. She'd have put my team to shame LOL! She continues to be a wonderful inspiration for us.
(And thanks for twittering Rachel for Reuben).
PS how lovely and amazing to get a comment from Rachel on Reuben's blog. That'll be great for him to look back on. Thanks for the tweet!
Here is some additional information about the "genetics" of this condition that was written by our Genetic Counselor and other genetic professionals: http://www.accessdna.com/condition/CHARGE_Syndrome/85. I hope it helps. Thanks, AccessDNA
Kennedy,
I am a Speech Pathology Graduate Student and I am doing research on CHARGE. I think your posts and videos are brilliant. You are a very special girl and are going to be someone very important when you grow up! Thank you for sharing this site to the world! Amber
Wow!! This is awesome, Kennedy! I'm very impressed! :)
I am definitely going to share this with the 14 year old girl I know that has CHARGE. Maybe seeing your video will help inspire her to do the same thing. :)
Hi, Kennedy. My daughter, Mia, was just born on September 11, 2011 with CHARGE Syndrome. She had choanal atresia (like you), and we're still figuring out the rest. You are such an inspiration to me and will be for Mia. Your presentation to the class was wonderful - as I'm still learning about CHARGE, it was a great learning experience for me. Keep blogging. I LOVE to read your adventures!
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