Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome!
Monday, August 24, 2009
Alice in Wonderland - Pics and Video
I'm not sure how many of you readers of the blog are not also Facebook friends but just in case, I'm going to post the video here of "Alice in Wonderland", in which Kennedy played the Queen of Hearts (as well as part of 'the black hole' and the Jabberwocky gang in other scenes...but the Q. was her main part). It's about 44 minutes long; if you're looking for K's main scene specifically, skip to about the 25 minute mark. If you have time, though, to watch it all, it's pretty darn cute. (I know, I'm biased.)
If you are a Facebook friend, I apologize for the redundancy but I can't help how cute, wonderful and talented these kids are!!
WOW! Kennedy, you are a star! I really, really enjoyed this. What a treat to watch.
(PS I was the Queen of Hearts, too, when I was in 4th grade. I remember being so nervous up on stage - but you, Kennedy, are so confident and poised and polished! A true actress!)
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
Continued research is needed to help us understand the medical and developmental challenges facing individuals with CHARGE. Better understanding will lead the way to interventions, therapies and educational strategies which can help people with CHARGE syndrome overcome many of the obstacles in their lives.
One of the hidden features of CHARGE syndrome is the determination and strong character these children display.
4 comments:
WOW! Kennedy, you are a star! I really, really enjoyed this. What a treat to watch.
(PS I was the Queen of Hearts, too, when I was in 4th grade. I remember being so nervous up on stage - but you, Kennedy, are so confident and poised and polished! A true actress!)
I LOVE Kennedy's love for acting and singing, its amazing!! Great job Kennedy you make a great queen!!
Hugs,
Crystal and Eva
Kennedy, as always, you ROCK! Awesome performance!
Wow these kids are talented! Kennedy did a great job performing! What an awesome post!
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