*In late June/early July, I spent two weeks at Perkins School for the Blind (Deafblind Proram) doing a teaching internship. It was amazing and I met a lot of super cool kids, a lot of whom had CHARGE. While I was there, Kennedy went with Nana & Papa to their trailer for two weeks. She had a lot of fun swimming, throwing rocks at the beach and, of course, shopping.
*We've been spending a lot of time doing stuff together since I got home because I missed her like MAD...watching movies (last night we watched Ghostbusters - too fun), shopping, and most of all preparing for the big CHARGE Syndrome Conference in Chicago next week. She is super-excited, especially about Conference Idol, taking place Friday night. She is going to sing "The Climb" by Miley Cyrus. She wanted highlights in her hair for the big performance so we did that this week and she also picked out a new dress & shoes to wear. I'm happy to report that Dad & big brother Kyle will also be coming and that Kyle has volunteered to work in childcare both days of the conference.
*Tonight, Kennedy & I, along with my good friend Jill, are heading down to Maine to our pal Courtney's trailer to have a girly camp-out this weekend. I know, kind of crazy right before conference but it'll be a lot of fun and I will still have Monday to get ready.
*After I arrived home from Perkins, Kennedy & I went to visit my beautiful granddaughter and Kennedy's sweet niece, Taylor. She is getting so big, four teeth now, standing and walking holding onto things, eating a bunch of different foods and just becoming a real big girl. I forgot my camera so was only able to grab a picture or two with my Blackberry. Here are the girls:
More to come with better pictures after conference. Hope your summer is going well and everyone is healthy. Please keep Cheyenne in your thoughts next week as she is having surgery.
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5 comments:
Thank You for thinking of Cheyenne in your post... no, the surgeries don't get easier, but we have a world of support from many special people like you & I can't tell you how much it means to us!
I wish we could be at the conference to see Kennedy perform, I know she will "knock their socks off"!! I hope you'll be able to video tape it for the blog! Hope you all have a great time at the conference, let us know how it all went! :) Big Hugs!!
Love, Cheyenne & Lori
You'll have to call me when you get to Chicago! I'd love a chance to meet Miss Kennedy, and to see you again. If you have a brief window of time in your schedule, let me know and I'll make myself available.
Great to hear an update! Sounds like your summer has been busy. Can't wait to see you at the conference and watch Kennedy perform!
Katie
Hi! I found your blog while looking for information about CHARGE syndrome, because I am going to be working at the CHARGE conference doing child care next weekend and I wanted some ideas of what to expect. I noticed you refered to the conference... is that the one at Indian Lakes Resort in Bloomingdale? If it is, maybe I'll see you there! :)
Nicki, that is the same conference and my 18 year old son is also volunteering in the childcare! See you there, you're going to have a lot fun!
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