Pies & Ice - the IceBucket Challenge with a CHARGE Twist

Check out this video where I take a pie in the face for every surgery Kennedy has ever had for CHARGE awareness and then an ice bucket for ALS!  Click on this Post to view.

Visit chargesyndrome.org to learn more and/or donate to support the CHARGE Syndrome Foundation!

CHARGE Through The Year 2015 Calendar

One of the phenomenal moms I have met through the online CHARGE syndrome world, Anna Miller, has put together the 2nd CHARGE Through The Year calendar for 2015.  This was a sell-out fundraiser and awareness raiser for CHARGE syndrome and the CHARGE Syndrome Foundation last year and promises to be another huge success this year.

I sent in Kennedy's photo for consideration and was pleased to see she made the cut - woohoo!  So many cute kiddos, it must've been hard choosing! For only twenty bucks, you can get your very own copy of the calendar to support the CHARGE Syndrome Foundation and promote awareness of CHARGE. 

Sneak peek of the video featuring the supermodels of the 2015 calendar is available on the website or on the video below - enjoy & share with your friends and family!