The Adventures of Kennedy: December 2012

Friday, December 7, 2012

Everybody Cut Footloose!

Kennedy with her "Scenes" group from HVHS, performing in Footloose!
First stage performance of high school...we were super proud. Best part? She had a BALL!

What is CHARGE Syndrome?

From the

CHARGE Syndrome Foundation:

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

Continued research is needed to help us understand the medical and developmental challenges facing individuals with CHARGE. Better understanding will lead the way to interventions, therapies and educational strategies which can help people with CHARGE syndrome overcome many of the obstacles in their lives.

One of the hidden features of CHARGE syndrome is the determination and strong character these children display.

Friday, December 7, 2012

Everybody Cut Footloose!

WELCOME!

Today is...

Team Kennedy CIFC

What is CHARGE Syndrome?

12th International CHARGE Syndrome Conference

Kennedy's Friends and Links

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Friday, December 7, 2012

Everybody Cut Footloose!

WELCOME!

Today is...

Team Kennedy CIFC

What is CHARGE Syndrome?

12th International CHARGE Syndrome Conference

Kennedy's Friends and Links

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Blog Archive

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My Visitors