To everyone reading this blog, no matter what you celebrate, I hope it was healthy, restful, relaxing and joyful. We had everyone here except for Taylor, who was with her mom in Nova Scotia but is thankfully coming to Moncton later this week so we will see her next weekend.
In other news, I am due to fly out tomorrow morning to Orlando for some meetings but from the look of the impending Nor'easter heading this way and having already received word from Air Canada to expect delays and cancellations, I'm not sure what will happen tomorrow. I'm only scheduled to be there until Thursday morning so a 1-2 delay will render the trip useless. I'm pretty sure they don't refund for situations like this either. On the bright side, my sister and her hubby and my niece Kendra are traveling home right now and should be here before the big bomb hits! Please be safe if you are traveling today or tomorrow - it's better to stay home and miss something and be safe!
The best gift of all was having all three of my babies under the same roof and the special times spent together to celebrate family. That's what the holidays are all about to me. My babies & I on Dec. 24th
Brother Scott, Kyle, nephew Stephen, Ryan and Dad posing for a festive photo on Dec. 24th.
I cannot believe that 2010 is done in 2 weeks. It's been quite a year for our family with me (mom) having a huge tumour in my stomach removed along with a full hysterectomy in August (all benign thank goodness), working full time & doing university in the fall until Dec. 3, when I fell and broke my leg, thus thrusting us into the holiday season with mom basically immobile. Dad also has hurt his shoulder and back this year. The back healed up quite nicely but the shoulder is going to take more work.
Nevertheless, we shall prevail as we always do! Despite the icky things that have happened, it's still been a good year. Here are some highlights: Kennedy - Kennedy passed her Red Cross certification for babysitting in February - She performed in the Interaction Children's Theatre Production of "Saint John History Mystery" - She ended the year on a great note from Grade 6 in June winning an award at school for her positive attitude - She participated in Cheerleading for the first time and did great at the competitions in the spring - Began grade 7 in the fall and had an amazing first home report: 5 A+, 2 A, and 1 B - she tries so hard and we are so proud of her! - Despite mom having to miss it because of injury, Kennedy enjoyed a fabulous time at a Justin Bieber concert in early December. (Dad wins "Dad of the Year" for taking her in amongst all those screaming girls!) - After many years with the BAHA Divino, we are testing a new BAHA for Kennedy called the Ponto, made by Oticon. We are THRILLED to report that she can independently put this one on herself - really one of the LAST things left that she could not do independently. This was SO HUGE for her. We will probably be ordering this for her in the new year.
Taylor - Taylor (our sweet granddaughter) turned two and had several celebrations in her honour. - She is talking so well and just progressing along wonderfully. - We love her immensely and although she has moved now with her mom Angela to Cape Breton, NS, she is home to Moncton, NB often so we can see her. - She came to visit us numerous times this year at our home and at the trailer. - We went down in October to visit her on Thanksgiving weekend (also her birthday). It's hard to believe she is two!
Ryan - Ryan (big brother) landed a new job that he really enjoys at Loblaws. - Still living in Moncton - We've just recently learned that our second grandchild is on the way, thanks to Ryan and his girlfriend Felicia - and this time, it's a boy and he will be called Seth (a name I LOVE - yay!)
Kyle - Kyle (big brother) landed a full time job at HMV that he enjoys. - He and girlfriend Marie are doing well and quite serious after a year and a half. - He and Marie are planning a trip to California...California, Ontario that is! This is Marie's hometown and they are going for a trip on the holiday break. Did you know there was a California in Ontario? I didn't, until I met Marie.
Graeme - Graeme had a good year with the blueberries - a lot better this year than last year (which, in his words, was awful!) - He has begun physiotherapy for what the physio has deemed a 'frozen' shoulder and after only a few sessions, he is showing progress so we are happy for that. It will take a lot more work to get it completely better, but at least he feels he is on the way (he hasn't been able to lift his left arm up past his chest since the spring).
Lisa - Well it's been a year for surgery, injury and recovery as mentioned in the beginning but I've learned there's nothing I can do about it and I might as well try and enjoy the 'break' (pun sadly intended). I'm trying to get other work done for the CHARGE Syndrome Foundation and for university while off work and looking forward to getting back with my students in the new year. - This year was also full of time 'away' as I had to go to Halifax for a month in July to begin my Master's degree (in Educational Psychology - Students who are Deaf or Hard of Hearing), then off to an undisclosed location immediately after that for a week to choose the site of the 2013 International CHARGE Syndrome Conference, and as of next week, I'm off to Orlando for an executive meeting at the 2011 site for the International CHARGE Syndrome Conference from the 27-30 of December. I'll be hopping along on crutches or in a wheelchair but will get it done!
I hope all of you who read the blog have a safe, healthy, and happy holiday season. Here is a little smattering of our 2010 in pictures...
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
Continued research is needed to help us understand the medical and developmental challenges facing individuals with CHARGE. Better understanding will lead the way to interventions, therapies and educational strategies which can help people with CHARGE syndrome overcome many of the obstacles in their lives.
One of the hidden features of CHARGE syndrome is the determination and strong character these children display.
Posts
